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Advisory Committee on Heritable Disorders in Newborns and Children

May 4-5, 2023 | In-Person Meeting with Webcast Option

Download a copy of the agenda with speaker information.

Agenda

Agenda: Thursday, May 4, 2023, from 10:00 AM – 3:50 PM Eastern Time

TIME TOPIC
10:00 AM – 10:15 AM Welcome
10:15 AM – 10:45 AM Newborn Screening and Early Intervention
10:45 AM – 11:15 AM Committee Discussion
11:15 AM – 11:25 AM Break
11:25 AM – 11:45 AM Research on Benefits and Harms from Uncertain Results
11:45 AM – 12:15 PM Committee Discussion
12:15 PM – 1:00 PM Lunch
 1:00 PM – 1:45 PM

Federal Agency Collaboration to Improve Newborn Screening Data Integration

  • Sickle Cell Data Collection (SCDC) Program
  • Implementing the Blueprint:  Implications on Newborn Screening
  • CDC’s Ed3N Project
1:45 PM – 2:30 PM Committee Discussion
2:30 PM – 2:40 PM Break
2:40 PM – 3:40 PM Public Comments
3:40 PM – 3:50 PM End of Day 1

 

Agenda: Friday, May 5, 2023 from 9:30 AM – 1:45 PM Eastern Time

TIME TOPIC
9:30 AM – 9:45 AM Welcome
9:45 AM –10:00 AM Prioritization and Capacity Workgroup Interim Update
10:00 AM – 10:15 AM Committee Discussion
10:15 AM – 10:45 AM ACHDNC Decision Matrix
10:45 AM – 11:30 AM Committee Discussion
11:30 AM – 12:15 PM Lunch Break
12:15 PM – 12:45 PM Ad-Hoc Topic Group Ideas
12:45 PM – 1:30 PM New Business
1:30 PM – 1:40 PM Acknowledgments and Awards
1:40 PM – 1:45 PM Adjourn
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