
Agenda
The meeting is scheduled for Thursday, February 9, 2023, from 9:30 AM to 3:00 PM Eastern Time (ET) and Friday, February 10, 2023 from 9:30 AM to 2:00 PM ET. A final agenda will be posted at least 48 hours prior to the meeting.
Agenda: Thursday, February 9, 2023, from 9:30 AM – 3:15 PM Eastern Time
TIME | TOPIC |
9:30 AM – 9:45 AM | Welcome |
9:45 AM – 10:30 AM | Public Comment |
10:30 AM – 11:30 AM | Newborn Screening for Krabbe Disease: A Systematic Review of the Evidence (Part 1) |
11:30 AM – 11:45 AM | Break |
11:45 AM – 12:45 PM | Newborn Screening for Krabbe Disease: A systematic Review of the Evidence and Review of Public Health Assessment Survey Results (Part 2) |
12:45 PM – 1:30 PM | Lunch |
1:30 PM – 2:15 PM | Committee Report: Newborn Screening for Krabbe Disease |
2:15 PM – 3:10 PM | Committee Discussion
|
3:10 PM – 3:15 PM | Orientation to Workgroup Sessions |
3:15 PM | End of Day 1 |
Agenda: Friday, February 10, 2023 from 9:30 AM – 2:00 PM Eastern Time
TIME | TOPIC |
9:30 AM – 9:45 AM | Welcome |
9:45 AM –10:15 AM | Prioritization and Capacity Workgroup Interim Update |
10:15 AM – 10:45 AM | Public Comment |
10:45 AM – 10:55 AM | Education and Training Workgroup Report |
10:55 AM – 11:05 AM | Follow-up and Treatment Workgroup Report |
11:05 AM – 11:15 AM | Laboratory Standards and Procedures Workgroup Report |
11:15 AM – 11:35 AM | Committee Discussion on Action Items |
11:35 AM – 12:00 PM | Lunch Break |
12:00 PM – 12:45 PM | Duchenne Muscular Dystrophy (DMD) Nomination Summary |
12:45 PM – 1:15 PM | Committee Discussion
|
1:15 PM – 1:45 PM | HRSA State Interoperability Program |
1:45 PM – 1:55 PM | Committee Discussion |
1:55 PM – 2:00 PM | New Business |
2:00 PM | Adjourn |